This blog is my outlet for my health issues, as I wanted a space where I could write in detail that wasn’t oversharing and too much for friends to read. Small warning! – There is no such thing as TMI (“too much information”) with me; I write about anything, and feel free to ask me about anything! I also want to use this space to talk about ableism.
I’m a 24-year-old guy, and have suffered from systemic lupus erythematosus (SLE, or just “lupus”) since the age of 15, but wasn’t diagnosed until six or seven years later, around the age of 21/22. It’s an autoimmune disease, which basically means that the immune system attacks the body’s cells and tissues instead of germs; this means that different patients with lupus can have varying symptoms depending on which part of the body is attacked. The disease can potentially attack any part of the body, and so a patient usually ends up with many secondary diagnoses.
I have also suffered with mental health issues since the age of 10, which in many ways have been worsened by having a chronic physical illness. I am diagnosed with chronic clinical depression and have had extensive problems with an addiction to self-harm. This blog is also an outlet for talking about these more sensitive issues in a more anonymous setting.
Sufferers of both lupus and depression often feel isolated and alone, and so I hope my rambling writing will maybe strike a chord with some people, and give them a sense that there are others out there who understand. Talking about health is often a taboo subject; one can feel like a hypochondriac with issues that people misunderstand, that take a long time to be diagnosed, and are often poorly understood even by doctors, and certainly writing extensively about symptoms and diagnoses can feel to me like others would find it “showing off”, even though I know that’s absolutely not the case. (Believe me, lupus is nothing to show off about!) But I believe these issues need their own spaces, and this is mine, a more personal space than writing in depth about these things on platforms like Facebook.
Comments are always welcome, and I hope someone out there finds the blog useful!